How Aspergers Had Made it a Unique Experience

I am an older adult and learned I had Aspergers later in life. Every day it can be a challenge to learn how to accommodate my needs in a world and that seems so difficult at times.  I started years ago when I left the world of work and went to the non-profit world. As a volunteer I have learned to be accepted, appreciated, and valued for my contributions no matter how big or small that is. I have won several awards for my efforts, written several articles on my stories, and I participated in the creation of a film called Programming Hope. 

When my father passed away it gave me a new set of challenges.  My father was my pillar. No matter where I was in the world his strength and just knowing he was around kept me going on a good path like a beacon from a lighthouse. After my father passed away I got married to a woman who at first met my vision of a marriage partner, but over time as things changed she taught me some other hard lessons. It made me reassess my needs on the spectrum.

As a result I created a new way to be guided by the lighthouse with a support team to keep me on calm waters of life. 

Some of the challenges with my Aspergers is my kind nature, sensitive nature, sensory issues, and anxiety issues that can really cause me to go into overload very quickly. My gifts can some times be misunderstood and taken advantage of by the world around me. The end result was going into the hospital for a life threatening infection that opened the door for the need to create a support system. The new system for my recovery is to care for myself emotionally, spiritually, financially and physically. I am going to share some stories of my process. It started by going to a doctor that understands Aspergers and putting me on a regimen of supplements to rebuild my immune system. Returning to the 12-step world, working with two healers to rebuild my health, continuing to work on boundaries with my therapist,  work on stress relief with boxing lessons, and to engage my sister in taking over my financial affairs with a long time financial advisor who knew my father. My stories will now follow. 

A New Home for “Autism Without Fear”…Updates from Michael John Carley

This is a column I think you will find informative—Greg
All,
My “Autism Without Fear” column has found a new home. It will reside now (and likely increase frequency) with the wonderfully inventive “Sinkhole.” They were at the top of my list of 8 appropriate venues for the column, so I’m thrilled. Thanks to the Huffington Post for four great years.
There will be one more AWF column that will appear in Exceptional Parent Magazine within the next month (a large one on travel) and two reprints of past AWFs, including the recent, large piece on Peer Support in Schools; but thereafter Sinkhole is home. I’ve signed the lease and can’t wait to decorate. They’re creative, (dare I say it) hip, and they’re supportive of that so-elusive blend of critical thinking and “uncontrarian” guts. Please enjoy checking them out.
Lotsa great articles since my last message to y’all have accumulated. My apologies (blame contract-hunting season).
• Big ups to the Toronto Star after yet another horrific shooting—this one on their turf. They immediately put out “Autism Not Associated with Violence…” Thank you, gang.
• So cool…we had LOTS of great international coverage on autism since my last missive…
—From Tanzania, an intro (give them time to learn more humanist lingo)
—From Malta, gorgeous paintings by an LCSW inspired by her spectrum clients
—From China, a Shanghai café helps spectrum teens integrate
• (“Why God, Why?”) From the NYTimes, No, Your Dog Can’t Get Autism From Vaccines
• Happy Belated Mothers Day From my beloved NEXT for Autism
• AND…Happy Belated Mother’s Day from new friends in Malaysia. We’re all gearing up for their first major conference in Kuala Lumpur, which I’ll be proudly keynoting.
• And on that shamelessly self-promotional note I’ll also now be the plenary lots of talks with Australia’s Autism West at their conference this coming November. If in Perth at that time, come watch me fall off a surfboard!
• The Darius McCollum saga is coming to a close, and the ending could be a relief, or it could be the most horrific ending imagineable for a gregarious, smart, kind man. Why NY prosecutors are this vengeful about a non-violent offender is beyond almost all of us. Fingers crossed.
• Define “tragic understatement”…Girls with Autism at High Risk for Sexual Abuse, Study Says.
• I met Prue Stevenson when I spoke in Sydney, Australia, last September, and she shared this project with me. Prue is true 🙂 She is re-opening the discussion about stimming, and her film “Stim Your Heart Out” should broaden the conversation ever outward.
• With thanks to Barry Prizant, New Wearable Detects Meltdowns (I know, I know…) Before They Happen.
• We are now at 1 in 59!!! Go cry, mourn, celebrate, denounce…whatev. And then wait for the results after real studies of race, long-term institutionalizations, or long-term incarcerations.
• Best for last…It’s not autism-specific, it’s broader disabilities; but it’s beautiful. From Modern Love, Love Means Never Having to Say…Anything.
Yours, y’all.
mjc
Michael John Carley
Author, School Consultant, Founder of GRASP
Twitter: @mjcarley